John’s Story

Following the recent National Schizophrenia Awareness Day on the 25th of July, we felt it important to shed some light on the personal experiences of those living with schizophrenia and its accompanying symptoms. By raising awareness, we can contribute to a better understanding of serious mental illness (SMI’s) and how to better support people living with SMI’s in society.

Prior to National Schizophrenia Awareness Day, we had the privilege of interviewing John, a member of our community who shared his candid journey with psychosis. His story offers valuable insights into the challenges, coping strategies, and the crucial role that support systems play in managing mental health conditions.

 Early Diagnoses and the Onset of Psychosis

John’s mental health journey began in 2002 with a diagnosis of Obsessive-Compulsive Disorder (OCD) and depression. However, the full picture of his condition remained unclear until four years ago when he was diagnosed with psychosis. Reflecting on this period, John noted, “I think I was having psychosis then, but it was very hard to get some insight into it, you know, so they didn’t diagnose it until like four years ago.”

 Navigating Life with Psychosis

Living with psychosis is a complex and often bewildering experience. John explained that his symptoms are episodic, with periods of normalcy interrupted by intense episodes. “I might get it three or four times a week for three or four hours,” he said, describing how he only realises he’s been in an episode after it has passed. His symptoms include auditory hallucinations and delusions, such as believing people on television are talking to him or experiencing himself as a character in a film.

 The Journey to Diagnosis and Treatment

Being diagnosed with a complex mental health condition like schizophrenia or psychosis can be a challenging process, which has been reflected in Johns’ story. He told us how he previously had consistent and regular checkups by healthcare professionals but now due to the strain on services, he’s facing longer gaps between appointments. 

Coping Mechanisms and Support Systems

John has developed several coping strategies over the years, including both medical and non-medical approaches. He has undergone Cognitive Behavioural Therapy (CBT) and psychoanalysis, and he practices mindfulness to manage painful emotions. Physical activities, like walking, and creative outlets, such as art and writing, also play a significant role in his coping strategy. “I try and accept [emotions] rather than fight them,” he shared, highlighting the value of mindfulness in his daily life.

BWW Mind has been a pillar of support for John, providing a safe space where he can connect with others who understand his experiences. He participates in art and creative writing sessions, which help him express himself and feel part of a community. “It feels like a community spirit that you don’t get outside,” he said, emphasising the importance of social support in his mental health journey.  

Stigma and the Need for Awareness

One of the most significant challenges John faces is the stigma surrounding mental health conditions. He often avoids disclosing his diagnosis to acquaintances due to fear of judgment and misunderstanding. “When I’ve disclosed it before, there’s been an awkward silence… it’s just a sense that you’re getting judged and they don’t understand,” he explained. This stigma extends to his interactions with healthcare providers and society at large, underscoring the need for greater awareness and empathy.

His reluctance to disclose his diagnosis stems from the fear of judgment and misunderstanding, which can lead to feelings of isolation and exclusion. This shows the importance of mental health charities, like BWW Mind, in fostering an environment where individuals feel accepted and comfortable expressing themselves in a safe non-judgmental space.

 Looking Forward: A Call for Change

John’s story is a powerful reminder of the resilience and strength required to live with a condition like psychosis. It also highlights the need for systemic changes in mental health care and societal attitudes. John advocates for more understanding, better support from healthcare providers, and greater governmental action to address mental health issues. “For the government to do more, and even the psychiatrists to do more… it’s not been the greatest care,” he urged.

As we mark National Schizophrenia Awareness Day, let us remember John’s story and the countless others like him. By taking the time to understand, show compassion, and advocate for better support systems, we can help those living with psychosis lead fuller, more empowered lives.

At BWW Mind, we are wholly committed to continuing our support and advocacy for mental health awareness and improved care for all.